Our 10 month son has been ventilated since birth and had a tracheostomy at 2 weeks old. He has been in hospital since birth.He has myotubular myopathy. I would like to move him home and am looking for guidelines. Also looking for advise. His parameters are as follows - rate 20, O2 30-35, pressures 19/5 and insiration time 0.45. He weighs 8.2kg.What are the best ventilators given the above and is there any way that we can ventilate him which will allow him a speech function?
I work for a ventilator company that makes the HT50 ventilator. The HT50 will easily handle your son's needs, is lightweight, has a 10 hour battery built-in that charges (in 5-7 hours) from AC or DC. Work with your doctor to get a trach that allows for your son to speak. Give me a call or email if you would like info on the HT50.
All my best,
Director of Clinical Education
Newport Medical Instruments
1.800.451.3111 ext 218
The LTV series ventilator by Pulmonetic Systems is also a good vent that could meet your needs. If you would like further information please call us at 1-800-754-1914.
While I hope you will get some valuable feedback from this list, I would like to suggest that you post your question also on Jim Lubin's excellent vent users list. I would bet you will get some good advice from other family members who care for infant vent users.
Jim Lubin's list is available through http://www.makoa.org/ventuser.htm. Check out http://www.makoa.org/vent/index.html and http://www.makoa.org as well.
I hope these help you!
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